First, you will fill out questions online to see if you can be in the study.

If you move to the next step, you will answer more survey questions online. This will take 10 minutes.

Then, some people will be chosen to do up to three 1-hour interviews about their experience as a caregiver, and their advice about how to improve hospice care and end-of-life care for their communities.

Not all individuals will be invited to participate. Individuals are considered enrolled in the study only at the time of the interview. Completing the interviews will take 2-3 months. Interviews may be scheduled by the study team up to six months after the initial interest form.

You will be paid with a small gift card for the online survey.

For the people chosen for the interviews, you will be paid with a larger gift card for each interview (up to three interviews total).

There is no cost for you.

First, you will fill out questions online to see if you can be in the study.  We may reach out to set up a time to speak with you by videoconference to clarify your eligibility, answer your questions, and potentially schedule an interview. 

During the interview, we may ask you questions about: 

• Your professional role
• Your professional perspectives on care of people with dementia in your organization
• Recommendations on how to improve care for people impacted by dementia in the future 

We may ask you to share documents from your organization specific to dementia care (e.g., brochures or pamphlets).

You will be paid with a gift card after the interview. 

There is no cost for you.

• We will schedule a convenient time for study team members to visit your organization for 2-4 days to learn more about how things work.  
• Study team members will observe meetings, either in-person or by videoconference 
• We will ask someone knowledgeable in your organization to complete a survey about the organization and its practices 
• We will ask for copies or photographs of materials (such as brochures or pamphlets) related to care of people with dementia  
• We will invite staff, clinicians, and volunteers to participate in interviews  
• We will ask you to advertise other parts of the study to former caregivers of people with dementia (e.g. through bereavement services).  

Your organization will receive $1,000.  

There is no cost for you.